25 October 2024
Rare neuropediatric diseases represent a large and heterogeneous group of disorders of varying severity, with a high impact on the development and quality of life of patients and families. This is the starting point of the Mariani Foundation’s course on rare neuropediatric diseases, a course that in its first edition, represents an opportunity for young neurologists, geneticists and paediatric neuropsychiatrists to keep abreast of the latest clinical, diagnostic and therapeutic developments. Among the speakers will be Professor Finocchiaro, who will address the issue of data protection in the field of scientific research in her talk “GDPR and privacy: how to get out of the maze without getting lost”.